Cautiously grateful

I wanted to share something my wife, Jen, wrote yesterday about our experience Sunday. I’m grateful for this miracle, and cautious because I know hydrocephalus can turn on a dime and we can find ourselves in the emergency room again.

We all had to wear masks because of COVID-19

From Jen’s Facebook post:

If you’re tired of all the negativity in the world right now, here’s something positive. We had a crazy, wonderful day yesterday and I want to share it with all of you. Xavier woke up at about 6:30 a.m. yesterday with a horrible headache. He crawled into our bed, crying and weak and I propped him up on some pillows to help his head. Jason gave him a blessing. Xavier’s hands were shaking as he drank some Tylenol and then he was able to go back to sleep. While he slept, Jason and I each showered and got ready. We hoped he would feel better when he woke up, but we have seen this before and we knew he would likely need surgery.

He woke up a couple hours later and his headache wasn’t any better. I gave him some Ibuprofen and called the hospital to let them know what was happening. They agreed with us that he needed to be seen right away and told me to stop giving him any liquids to prepare him for surgery. We prayed as a family before we left that he would be healed if it was God’s will.

On the way to the hospital, he alternated between sleeping and crying. Once we arrived there he suddenly started feeling better. They did some x-rays which all looked actually pretty good. We were still kind of nervous about leaving, but after he was able to eat without getting sick, we felt like there was no reason to stay. It was a miracle because his shunt was definitely malfunctioning and we believe it was an answer to prayers that it started working again without any surgical intervention. I know God loves us all and He does indeed answer prayers. @ Seattle Children’s

We knew that he was feeling better because usually light and sound bother him. He wanted to watch TV at the hospital. That is something he wouldn’t do when he has a bad headache.

When Xavier crawled into bed with us saying he had a headache and hearing those familiar cries of pain, my heart sank. Jen asked me to give him a blessing. I’m now 50 years old. I’ve given a lot of priesthood blessings. I try as much as possible to seek God’s will in the blessing and speak according to the guidance of the Spirit. Jen mentioned that she offered a prayer. I often think miracles come from a mother’s faith.

The 3 hour drive to Seattle Children’s Hospital is not fun when you have a sick child. I was so thankful that Xavier was able to sleep for part of the way. Whenever he was awake he was in pain and crying, holding his head. I can’t imagine the pain that he endures. In addition to that, I know some of the crying was just him thinking of having to go back to Seattle Children’s Hospital and have another surgery. While he was asleep, I kept thanking Heavenly Father for that blessing. I watched every mile that went by and knew that was one more mile that Xavier would not be in pain while he slept.

You can still see the dots on his forehead from the marker they put on his head before the Cat Scan. But he is feeling great! We are very grateful.

I have had my heart filled with cautious gratitude since being released. Don’t take that wrong, I am filled with gratitude. I am just cautious in knowing the reality of hydrocephalus and that a shunt failure is always possible again around the corner. For now, we are all feeling very blessed for every day that we go without another surgery.

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